If not provided with moisture in time, Ari’s body will shrink and become frozen
Since birth until now, day or night, Ari has had to constantly soak in water and apply itmoisturizerEvery 3 hours to avoid further dry skin. If not provided with moisture in time, Ari’s body will shrink and become frozen. At that time, the boy will be like a wax statue and cannot move. Wrinkles will even form inside the boy’s oral cavity and dry out his blood.
Ari was diagnosed with Erythroderma – a rare inflammatory skin disease – which causes the skin of his entire body to scaly and peel like a snake’s skin. The boy was taken to a local hospital for treatment, but the doctors there were not qualified to treat the boy.
PhotographerNurcholis Anhari Lubis (35 years old) took pictures of the “snake-skinned boy” to document a project. TastephotographerThis boy shared with the Daily Mail : “The boy was born unusual because of thick scales like snake skin all over his body. From head to toe, Ari was peeling. Even so, Ari still ate and drank as usual.Favourite foodThe boy’s is instant noodles and biscuits.”
Every day, to keep Ari alive, the family must constantly take turns caring for him. Although Ari is trying hard to integrate into normal life, he still has difficulty making friends. Occasionally, Ari also goes out to play with other children in the village, but most people avoid him because of Ari’s unusual appearance.